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At the moment I am reading 'The Meaning of things - Applying Philosophy to Life (a great little book that is written in bite sized chapters and isnt hard to understand - so far I have read about death, sorrow, prudence, moralising, tolerance, courage v cowardice and lying - it really is very thought provoking) I am also delving into 'Ten Things Every Child With Autism Wishes You Knew', which is eye opening and enlightening. I've just finished reading 'Can I Tell You About Aspurger Syndrome' which was easily readable in an afternoon. The book could almost be written specifically about Barney. Tarja and Badger are going to have a read of it over the summer holidays. It is a great book for helping siblings, parents, family or friends to understand Aspergers more. I'd recommend it to anyone who's child is affected by Aspergers.
Barney has had a good few days, after the meltdown he had at my sisters house on Saturday. It was Badgers 14t
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Anyway, we had a nice meal cooked by my lovely little sister, and we played with her cat. All was well until it was time to go home, late at about 9.30pm. We packed our bags and headed out to the car, all was well. I strapped Rosie into her car seat, my sister strapped Barney into his booster seat. I turned the engine on and opened one of the electric windows. Suddenly Barney had a complete meltdown. Goodness knows what triggered it? Me opening the window without telling him? The noise of the engine? I've no idea, and nor has he. He started screaming that he had to get out, undid his seat belt, opened the door, ran out into the road, ran into my sisters house screaming that he was going to be sick. He ran into her bathroom and stood over the toilet hyperventilating, shaking and begging me not to make him go back outside.
I talked him down and we went back out to the car. I strapped him in again. Got back in myself. Said goodbye again to my sister. And then the same thing happened again. He ran back into the house and told
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We managed to make it home by me talking to him about all the things we had done during the day. When he was settled and seemed happier I brought up the subject of what had just happened and we tried to figure out together what was going on. He didn't seem to know what had triggered this particular panic attack. He kept asking me 'Mummy, what is wrong with me? Why am I like this?" I felt so torn for him. So I started to tell him how everyone was different and that we all have different ways of thinking or coping with things. I said to him that there are some people who think very diff
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So I asked him a few questions such as 'what happens at school that makes you panic?', 'what things happen at home that make you feel anxious?' 'what could we do to make you feel better/safer/happier?' He told me that almost every single day at school he has a panic where he has to tell the teacher that he is going to be sick. He said he feels that way if outdoor play time is cancelled due to rain, if they have to go to the library/assembly/PE, if his teacher is off sick and they have a different teacher, if he has to sit in a new seat or do something new. Basically, he feels rotten if there is any change in plan to what he is expecting. I asked him what makes him feel panicky at home. I couldn't think of any reason myself why he would panic at home. He thought for a while and then said he feels bad if its dinner time and no one has warned him that dinner is being cooked, if he doesn't know what is for dinner in advance, if anyone shouts, argues, or slams a door, if Rosie cries, if he doesn't know what time is bed time, and so on. So I asked him how we could make life easier for him. He suggested that every morning we draw a picture of what will be for dinner and put it on the fridge for him, and that we always tell him half an hour in advance of dinner time so that he is prepared. He suggested that we also show him what is in his lunch box in the morning before going to school. (I notice that on the days his school lunch is a surprise, he doesn't eat it). He asked that I make clock pictures to show the times that different things will happen.
He also said that he can't stand it that everyone lies. "People keep lying to me, I just can't stand it when people lie to me". I asked him who lies to him. "You, Daddy, everyone lies and I don't like it". W
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Our little chat was a bit of a lightbulb moment for him. He didn't want it to end, and seemed relieved and at peace. He asked me to write a letter to all the children in his class saying 'Barney is an Asperger person, so please don't scare him any more'.
Talking of school, I went on the school trip to Cheeky Monkeys yesterday. All in all it went pretty well. Barney was partnered with a girl that he really likes and seems to get on well with. His teacher saved a seat for me near him on the bus, just across the isle from him and his friend. So I was able to chat with him on the way there. He played at Cheeky Monkeys with out any problem at all, which was a relief. It wasn't until it was time to go home that there was any problem. The teacher had told the children where to sit on the way there, and had saved a seat for me. Barney obviously envisaged that everyone would sit in the same places on the way home, but the teacher let them all in willy nilly. I could see through the bus window the horror on his face as he tried to save my seat for me so that I could sit where I was last time, across from him. But some other children took that seat and he was very upset. I got onto the bus and found a seat just behind where I had sat before. But he wasn't happy about it. He started to cry and I didn't know what to do as it was a school trip and I couldn't very well start moving everyone around. The teacher was at the other end of the bus. It made me realise how difficult anything unexpected is for him. In the end the lady sitting next to me swapped seats with him so that he could sit next to me, and he was happy again.
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3 comments:
Wow that's really interesting, enlightening and sad all at once! But I suppose that as he understands how he think better and has people around who can help him to find ways of making things easier, it doesn't have to affect his life in a negative way too much. It must have been such a worry to him that he never really knew about until there was an answer in front of him and he could suddenly identify with himself. Very interesting. Will have to read the Asbergers book too!
The bit about you writing a letter to all his classmates really yugged at my heart strings. He is obviously a very intelligent little boy so hopefully between you you can continue to come up with ways to make his life (and yours) easier.
Love to you all.
Cxx
I bet writing it all down really helps.
I really am happy that Barney has been able to take such comfort from seeing himself as an "Aspergers person." He's such a smart boy. I'm sure he'll gain so much from having such understanding and helpful listening and action plans.
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